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Mon histoire

Ce patient a partagé son expérience, vécue pendant des années avec des symptômes inexpliqués avant de finalement poser son propre diagnostic. Son histoire met en lumière les difficultés rencontrées par de nombreuses personnes pour obtenir un diagnostic rapide et précis.

Mon histoire

Par : Jade Bald ; Publié le 29 décembre 2021

Je me suis autodiagnostiquée à 24 ans, en 2015 (l'année de mes 25 ans), car mes médecins n'étaient pas d'une grande aide. J'ai fait un certain nombre de tests et d'analyses et tous sont revenus négatifs, heureusement. Cependant, pendant un temps, j'ai pensé que je devenais folle, mais cela a vite changé. J'ai fait des recherches sur mes symptômes et j'ai d'abord pensé qu'il s'agissait de SEP, car les symptômes semblaient identiques, mais ensuite, j'ai creusé davantage et je suis tombée sur la fibromyalgie. Les symptômes correspondaient parfaitement. 

I was plagued by: Unrestful sleep, all over pain, daytime fatigue, IBS-C, headaches, fibro fog, and painful periods. I've since developed tinnitus (which comes and goes) and non-allergic rhinitis. 

I'm still depressed, but that's also because I'm unemployed (despite having a history degree) and I have no financial freedom as a result of this. I am a writer by trae, it's one of my passions, along with fashion , social media, and crime studies. 

My dream would be to finally get that novel finished (I'm good at starting things but not at finishing) and get it published. I'd also love to have a popular blog, but it's just so competitive in the blogosphere and besides I have so many interests, it's hard to decide on one. 

In the meantime, I've settled on writing guest posts. I've been lucky to write for over twenty blogs and penned over forty articles in the past two years.

Être atteint d’une maladie chronique n’aide pas les choses et le brouillard fibromyalgique rend la réflexion et l’écriture plus difficiles qu’elles ne devraient l’être.

I also was anxious and depressed because this did not make sense. I was a formerly fit young person. I ate well and exercised. I was thin and never touched a beer, a cigarette, or a joint in my life. I never partied or otherwise abused my body. I was thankfully never in a big accident or caught a big virus. like Lyme disease. I'd taken some tumbles as a kid and in the winter on ice as a young adult, but none that forced me to have a cast or have bed rest.I didn't have any childhood history of chronic health issues or a family disposition of genetic issues, either. 

C'était un mystère, comme les mystères européens que j'aime regarder de temps en temps.

2019 est arrivé. 

Au début de cette année-là, j'ai découvert la personne hautement sensible (HSP). C'était après avoir découvert que j'étais un INFJ, sur le MBTI (Myers-Briggs Type Indicator).

It all made sense. It explained my past. Why I had been dragging my feet when all the other kids seemed to be unfazed. Why I seemed to make everything more intense than it was. Why I had trouble sleeping. It didn't help that due to my mom going back to school full time, we moved six times in ten years, between ages two and twelve.
 It was just a blur of houses, schools, and neighbourhoods. Not to mention I was bullied a lot....

I eventually didn't want to make friends, because we'd just up and move. My mother was emotionally immature and parentified me and never tended to my emotional needs. However, it's not surprising as she's an Adult Child of Alcoholic ( ACOA). Her father was an alcoholic who psychologically and financially scarred her and her two siblings for life. 

Moreover, she split from my cheating dad when I was two and he died of a heart attack when I was three. There are two points on the Adverse Childhood Experiences score (ACEs) right there. His death prompted her to change her career path from geology to criminal law and as I mentioned above, we up and moved a lot, another disruptive thing in a child's life. It's not included in the ACE score, nor is bullying, but they should be. My poor body is reeling from the effects of complex trauma and childhood emotional neglect, borne out of being raised by a traumatized, emotionally immature parent. 

Self care, self compassion and stress management are the ways in which symptoms are dealt with. Getting a decent night's sleep is also essential, as is connecting with others via social media and email whenever possible. 

Jade Bald est originaire de l'Ontario, au Canada. Diplômée de l'Université Laurentienne, elle représente l'Association canadienne de la fibromyalgie et est maman d'un chat. Elle est également rédactrice pigiste et a écrit pour des blogues tels que Tiny Buddha, Rebelle Society et The Good Men Project. Son site web est jadebaldwrtier.weebly.com
Pinterest : northernwriter
Twitter : jade_bald
Linkedin : Jade Bald

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